Une femme de 27 ans est en train de mourir d'une dystrophie musculaire et se bat pour la légalisation de l'euthanasie

Une jeune femme de 27 ans vit un véritable enfer et se bat pour que l'euthanasie devienne légale.

Holly Warland est âgée de 27 ans et elle se bat contre une maladie rare du nom de dystrophie musculaire  qui peut toucher n'importe qui. C'est à l'âge de 11 ans qu'elle a appris qu'elle souffrait de la terrible pathologie.

Elle a travaillé dur afin d'obtenir un baccalauréat et elle rêvait de devenir docteur. Mais tout a changé quand elle a atteint l'âge de 25 ans. En effet, elle en était à la moitié de son doctorat, elle a remarqué son état de santé se dégradait de plus en plus.

View this post on Instagram

I hadn't left the house in a month but today was my monthly doctor appointment so I made an effort and wore my fantastic @broadcity shirt. I had to have a difficult conversation with my doctor about how I'm petrified of becoming addicted to painkillers but need to increase my dosage due to my dip in strength and mobility now. I shed a few tears and he calmly explained that because of my condition, I was only going to get worse and there's no possible treatment so I am kind of allowed to become addicted because there's essentially nothing to lose. Of course he said it in a more professional way, he wasn't advocating pill addiction! It was a tiring visit and I was sore, and quite sad. This was until Luke helped me off the table and one of my adhesive bra cups (as featured in pic 2) just tumbled right out of my shirt. It landed with a plop on the floor and we all cracked up. I don't believe in silver linings, but it definitely lightened the mood. Do boobs solve everything? @ilanusglazer @abbijacobson #boobs #doctor #pain #addiction #disability #awesometshirt #broadcity

A post shared by Holly Warland (@hollywiththemd) on

En 2016, elle s'est retrouvé obligée de mettre fin à ses études et de quitter son emploi d'enseignante. Tous les jours, elle souffrait de terribles nausées, des palpitations, des courbatures, de l'hyperventilation et de terribles tremblements.

Sur son compte Instagram, la jeune femme a décidé de partager toutes ces difficultés et bien plus encore.

View this post on Instagram

This is a throwback photo to my happiest time in academia. It was around 2013 and I'd just finished my Honors degree in Psychology. My thesis findings were really interesting so a lot of people and media wanted to talk to me. It was great. I felt respected for my hard work and that my MD had nothing to do with this success, it was purely my hard work. This photo was of me in my only professional clothes I had just before I presented my findings at a conference. I've always been comfortable public speaking so I was very excited. Now that I'm bed bound and haven't even picked up a book in the last few months, I'm so glad I peaked early and achieved a lot of my goals before my body turned on me. I often forget that I have an honors degree (and half a PhD haha!). That's pretty damn impressive. I did fit a lot of hard work and achievements into my life and that can never be taken away, regardless of how sick I might become. (If you're a nerd and would like to know about my research, just Google 'Holly Warland Autism' and there are a few reports on my findings)

A post shared by Holly Warland (@hollywiththemd) on

"Lorsque mon état s'est aggravé, mon partenaire Luke et moi avons décidé de prendre des photos de mon corps nu et de les poster en ligne pour que les gens puissent voir ce que le handicap fait au corps humain."

"Lorsque mon état s'est aggravé, mon partenaire Luke et moi avons décidé de prendre des photos de mon corps nu et de les poster en ligne pour que les gens puissent voir ce que le handicap a sur le corps humain." 

Holly parle des moments les plus difficiles de son quotidien, en légende de photos prises par son petit ami Luke. Malheureusement, cela fait quatre ans que la jeune femme passe la plupart de son temps à l'hôpital et sa vie est devenu un véritable enfer.

View this post on Instagram

I'm not a mooshy person but Luke has definitely softened me over the past few years. The classic 'don't want to get too close because they'll probably leave' mentality. Every time something new and awful happened to my body/mind I thought it would be the last straw and he'd walk out but he's either being paid dearly by a philanthropist or he's a wonderful human being who was 15 minutes away from me for most of my adult life without me knowing. I wish I could believe I'd be as strong as I am now without him, but I have literal nightmares about losing him. Also, Australia has finally caught up with the rest of Western civilization and has legalised same sex marriage so now everyone can feel as loved as I do! #samesexmarriage #loveislove

A post shared by Holly Warland (@hollywiththemd) on

De simples choses comme prendre une douche ou aller aux toilettes la laissent à bout de souffle. Elle a donc envie de se battre pour que l'euthanasie devienne légale afin que les gens qui souffrent comme elle puisse avoir un moyen de mettre fin à leurs jours quand ils nen peuvent plus.

View this post on Instagram

The withdrawal from anti depressants and the contraceptive pill has been rough. I'm crying multiple times a day. Sometimes over things worth crying about and other times because I lost my remote even though it was right next to me. The nausea is slowly subsiding which is a heavenly blessing but it's being overshadowed by pain, emotions, and hormone changes. Today I was just angry. Furious that able bodied, well people complain about things in their lives. Now I'm a feminist Marxist who will chew your ear off about inequality, but if you have a working body and mind, you can CHANGE things. So many people take their autonomy and body forgranted. I can't muster up sympathy for someone who doesn't try. Who holes themselves up inside. You need to help yourself. Stop whining and be proactive. Lonely? Join a group that engages in your favourite hobbies. Unhealthy/overweight? Change your habits. Feeling down? Go for a walk in the sun. I'm not trying to simplify depression or real problems, but YOU CAN CHANGE. I can't. I'm stuck. I'm pissed off. My body dictates my day/life. I'm not being inspirational when I tell you to get off the couch and stop feeling sorry for yourself. I'm angry at you. I'm jealous. I want your shitty life. Because you have a life.

A post shared by Holly Warland (@hollywiththemd) on

Dans un récent article nous vous parlions d'Aurelia Brouwers qui a mis fin à ses jours grâce à l'euthanasie. Apprenez-en plus en cliquant ici.

Les postes connexes
Santé Apr 03, 2019
Un garçon de 6 ans meurt tragiquement en attendant de prendre une photo de son équipe de baseball
Relation Apr 10, 2019
Un homme de 70 ans de la Floride révèle que les gens confondent sa femme avec sa "belle petite-fille"
Mar 14, 2019
Une mystérieuse maladie fait parler et agir une petite fille de 10 ans comme un bébé
Relation Apr 05, 2019
"Très affecté mais satisfait" : l'homme qui a aidé sa femme malade à mourir témoigne